Resources for Families and Providers

Below are links to more information and resources for patients, providers, and families facing genetic diseases and conditions. 

• For reliable information about genetic concepts and genetic conditions, visit MedlinePlus: Genetics
• For easy-to-understand, trustworthy resources for families about certain genetic disorders, visit GARD
• For information about rare disease advocacy, research, and webinars, visit Genetic Alliance
• For free pamphlets on genetic disease for patient families and providers, visit UNIQUE